He is the Co-Founder with his brother Ben Heywood and Jeff Cole and Chairman of PatientsLikeMe and the Founder and Former CEO of the ALS Therapy Development Institute. Since Stephens (alsking101) diagnosis in 1998, we have learned so much about what patients need to know. We hope to help patients share their knowledge with others. PatientsLikeMe and ALS TDI come from the concept of wanting to find answers for todays patients.